Right now I'm mostly numb. A few days ago when I felt the plan shifting from "lets try to get him as healthy as possible so we can avoid surgery" to "lets get him as healthy as possible so he does well in surgery" I had a good, long, thorough breakdown. I think I cried for 4 straight hours. It was a great pressure release. I'm still scared to death, but I've come to accept that we are out of alternatives.
Monday, March 21, 2011
Back To Surgery
Linus's last 2 echos have shown that his mitral valve has severe regurgitation. It lets just as much blood flow backwards as it does forwards. He has developed pulmonary hypertension as a result. Linus has been difficult to keep stable since he crashed on the 11th, but his weekend it got worse. Despite the fact that he is on a minimum dilution protocol and 4 diuretics, his body started taking on fluid again. Fluid is practically pouring into his lungs. Now his kidneys are starting to show the effects of the medications. We're losing ground. Tomorrow morning he will go back into surgery and have his ruined mitral valve replaced by a mechanical one. This procedure is very dangerous. It has a 20-36% mortality rate in children under 5 years. The fact that he is under 6 months puts him at the top of that statistic. He will have to be on blood thinners for the rest of his life so that clots do not form on his new hardware. This in itself is dangerous. It is very difficult to regulate blood thinners in an infant. They grow so quickly and have a tendency to spit up and "lose" some of their dose. Too much and they can bleed out, too little and they can develop fatal clots.